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Support Resources


Alliance for Pelvic Pain: Join Us For a Weekend Retreat

Education Seminars, Interactive workshops,One-on-one Attention, and more!

When: May 20 - 22, 2016
Where: Honor's Haven Resort & Spa - Ellenville, NY

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Alliance for Pelvic Pain Website

Most of the websites below can direct you to an appropriate healthcare provider. Some of the sites do not have addresses, but they do have individual e-mails to contact someone with a question.

  • American Physical Therapy Association; Women's Health:
    Tel: (800) 999-2782 Web Site: www.apta.org
  • American Fibromyalgia Syndrome Association:
    Tel: (520) 773-1570 Web Site: www.afsafund.org
  • American Urological Association:
    Tel: (410) 727-1100 Web Site: www.auanet.org
  • Biofeedback Certification Institute of America:
    Tel: (303) 420-2902 Web Site: www.bcia.org
  • Chronic Fatigue and Immune Dysfunction Syndrome:
    Tel: (800) 44-CFIDS Web Site: www.cfids.org
  • Endometriosis Association:
    Tel: (800) 992-3636 Web Site: www.endometriosisassn.org
  • Fibromyalgia Association:
    PO Box 2373, Centreville, VA 22020; 703-790-2324
  • International Foundation for Functional Gastrointestinal Disorders:
    Tel: (888) 964-2001 Web Site: www.iffgd.org
  • International Pelvic Pain Society:
    Tel: (847) 517-8712 Web Site: www.pelvicpain.org
  • International Society for the Study of Vulvovaginal Disease (ISSVD)
    930 N. Meacham Rd, Schaumburg, IL 60173-6016
  • International Society for the Study of Women's Sexual Health (ISSWSH)
    Web Site: http://isswsh.org/
  • International Urogynecological Association:
    Web Site: www.iuga.org
  • Interstitial Cystitis Association:
    Tel: (800) HELP-ICA Web Site: www.ichelp.org
  • Interstitial Cystitis Network:
    Tel: (707) 538-9442 Web Site: www.ic-network.com
  • National Association for Continence:
    Tel: (864) 579-7900 Web Site: www.nafc.org
  • National Lymphedema Network:
    Tel: (800) 541-3259 Web Site: www.lymphnet.org
  • National Vulvodynia Association:
    Tel: (301) 299-0775 Web Site: www.nva.org
  • Society for Pudendal Neuralgia:
    Email: Jeana.Dill@spuninfo.org. Web Site: www.spuninfo.org
  • Society of Urological Nurses and Associates:
    Email: suna@ajj.org Web Site: www.suna.org
  • Prostatitis Association:
    Tel: (888) 891-4200 Web Site: www prostatitis.org
  • American Physical Therapy Association:
    Tel: (800) 999-2782 Web Site: www.apta.org
  • Vulvar Pain Foundation:
    Tel: (336) 226-0704 Web Site: www.vulvarpainfoundation.org

The following websites can give you more information regarding pelvic floor dysfunction, pelvic pain, and chronic pain syndromes:

Also, there are various support groups for the different diagnosis, so depending on what your symptoms are, check out the specific website for chat rooms and patient support groups.