Support Resources

Newsletters

Most of the below websites can direct you to an appropriate healthcare provider. Some of the sites do not have addresses, but they do have individual e-mails to contact someone with a question.

• American Physical Therapy Association; Women's Health:
  Tel: (800) 999-2782 Web Site: www.apta.org

• American Fibromyalgia Syndrome Association:
  Tel: (520) 773-1570 Web Site: www.afsafund.org

• American Urological Association:
  Tel: (410) 727-1100 Web Site: www.auanet.org

• Biofeedback Certification Institute of America:
  Tel: (303) 420-2902 Web Site: www.bcia.org

• Chronic Fatigue and Immune Dysfunction Syndrome:
  Tel: (800) 44-CFIDS Web Site: www.cfids.org

• Endometriosis Association:
  Tel: (800) 992-3636 Web Site: www.endometriosisassn.org
  endo@endometriosisAssn.org

• Fibromyalgia Association:
  PO Box 2373, Centreville, VA 22020; 703-790-2324

• International Foundation for Functional Gastrointestinal Disorders:
  Tel: (888) 964-2001 Web Site: www.iffgd.org

• International Pelvic Pain Society:
  Tel: (847) 517-8712 Web Site: www.pelvicpain.org

• International Society for the Study of Vulvovaginal Disease (ISSVD)
  930 N. Meacham Rd, Schaumburg, IL 60173-6016

• International Urogynecological Association:
  Web Site: www.iuga.org

• Interstitial Cystitis Association:
  Tel: (800) HELP-ICA Web Site: www.ichelp.org

• Interstitial Cystitis Network:
  Tel: (707) 538-9442 Web Site: www.ic-network.com

• National Association for Continence:
  Tel: (864) 579-7900 Web Site: www.nafc.org

• National Lymphedema Network:
  Tel: (800) 541-3259 Web Site: www.lymphnet.org

• National Vulvodynia Association:
  Tel: (301) 299-0775 Web Site: www.nva.org

• Society for Pudendal Neuralgia:
  Email: Jeana.Dill@spuninfo.org. Web Site: www.spuninfo.org

• Society of Urological Nurses and Associates:
  Email: suna@ajj.org Web Site: www.suna.org

• Prostatitis Association:
  Tel: (888) 891-4200 Web Site: www prostatitis.org

• American Physical Therapy Association:
  Tel: (800) 999-2782 Web Site: www.apta.org

• Vulvar Pain Foundation:
  Tel: (336) 226-0704 Web Site: www.vulvarpainfoundation.org

The following below websites can give you more information regarding pelvic floor dysfunction, pelvic pain, and chronic pain syndromes:

• beyondbasicsphysicaltherapy.com; Beyond Basics Physical Therapy: 1560 Broadway Suite #311, NY, NY 10036
• painchannel.com
• hisandherhealth.com

Also, there are various support groups for the different diagnosis, so depending on what your symptoms are, check out the specific website for chat rooms and patient support groups.

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